Today was Maura Rohama's first appointment with TEIS (Tennessee Early Intervention Services). I answered a lot of questions about Maura Rohama's development milestones and she received a grade per se. We have asked for a complete evaluation that is very thorough (that will come in the weeks ahead). She is doing really well but does need some help with her motor skills. Via her birth certificate, she is now 10 months old, however the doctors think she is actually only 8 months old but we are going to leave her birthdate alone as changing it could create more of a headache and there's really no way to know for sure. If Maura Rohama is accepted into the program, she will gain invaluable assistance with learning to crawl, walk, etc.
When we first brought her home, her legs were like rubber - absolutely no strength at all - but now, she is able to pull-up with little assistance, can bounce, pull-up on all fours, and support herself. We were shown several exercises while we were at Vanderbilt, so I try to work with her every day and her hard work is paying off!
We started her on #1 baby food yesterday. She ate sweet potatoes for the first time yesterday and loved them. Because she only weighs 11lbs 13 oz., it is really important that she consume her high calorie formula more than eat food (cereal is very difficult to get into her) but she's giving us a really hard time and watches us intently as we eat....it makes us feel so bad, so we do what we can not to eat in front of her. Our house is now built on schedules and rotations! Because of all her medicine, there is a list of food that she cannot eat and unfortunately most fruits are on that list, so we have to be so careful as her palate expands.
Well, we'll hear back from TEIS in about 2 weeks, so we'll see if she qualifies for any services. We want to do everything possible to help her catch-up and have the best life possible!
2 comments:
Erica we used the same type of service with Gray and in GA it is called Babies Can't Wait. The service providers we worked with were wonderful and helped him with lots of developmental milestones. They actually came in home so we didn't have to miss much work and once the schedule was set you could count on them. We are in prayer for you all and are praying for healing as well with Maura and your family situation. I love you all and miss you dearly. Can't wait to see everyone.
She is so beautiful Erica--- and in exactly the perfect hands! It is going to be so fun to watch her meet all her milestones with grace and strength! :)
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