Well, Maura Rohama slept great last night. She finally took a bottle mixed 3/4 with F-100 and 1/4 Enfamil Lipil - we think she cooperated out of starvation as she has refused an identical bottle since 4 a.m. today. We've mixed vanilla flavoring with it to enhance the taste but she still refuses to eat. We are now trying Good Start, so we'll see if she's gets hungry enough later to take that - right now, she refuses that as well. We are almost out of F-100, so she's going to have to eat something else soon. We are working with a nutritionist, so hopefully we will get this resolved soon.
Right now, Maura Rohama is lying in her bed and watching "Nemo". She is babbling and blowing bubbles. She is very happy and content, so that definitely helps lift our spirits. Here's some phots of Vandy's perplexing patient:
As she continually reaches up and plays, nurses and doctors keep saying, "She doesn't appear sick!" Well, we're still praying for miracles and healing, but in the meantime we are loving our adorable, playful blessing!
Don't come near her with a lab tray or she looks at you like this. She is becoming very wary of new people!
One thing that I failed to mention yesterday was that we have been warned that she does not need to be exposed to a lot of people right now. Dr. Fish, a cardiologist, stated that we must keep her away from church, social outings, neighbors, visiting family, etc. for right now. He warned us to keep her visitors to a minimum until we can determine the root cause of her problem and see how she's going to respond to treatment. So, I know lots of you want to meet her, but right now, we are asking that perhaps you call or e-mail to check on her in lieu of visiting....this is VERY hard for me as I am so excited to show her off, but we must protect Maura Rohama's health. Even the tiniest sniffle or runny nose or sore throat could prove fatal to her right now, so we appreciate your cooperation and understanding.
So, I called my landlord for my office and my practice is shutting down for a little while. I will be moving my office home at the end of December so I can focus my attention on my children. I appreciate your prayers on this as we depend on my income as well but we are trusting God to provide - He always does. Hopefully once Rohama is doing better, I can resume practicing mostly court-appointed cases for awhile and start to rebuild my practice. I'm praying that God will give me direction, and I would appreciate your prayers about this as well. This is such a scary time for my family but we are walking in faith and are expecting wonderful blessings from God and we know that He will provide for our every need.
Last night, I broke the news to my grandmother that we will likely not be at our family Christmas gathering this year...this just breaks my heart but it is necessary in order to protect Maura's. She said that she understood but I could hear the sadness in her voice. We will also most likely miss the gathering for my father's side of the family which proves to be very frustrating because Dad has rented the facility for all his brothers and sisters and we were supposed to be heading it up. I guess delegating is going to be used quite a bit to pull the function together without our actually being there!
Well, the team of doctors is supposed to come-in soon, so I must bathe and get ready for whatever today brings. It's a beautiful day in Tennessee, so let's see what God has planned for today!
